Eli's life with Dad 💙

Eli is an only child who is loved by many from his parents, friends, and his community. The love between him and I is special. The reason I decided to start our own channel is to share our love and our bond to the world. Eli's life is not that of a typical child. My little man was diagnosed with AGS (Aicardi Goutieres Syndrome) inherited encephalopathy that affects babies that result in mental and physical disabilities. Eli was once your typical kid growing up until his genetic disorder started presenting itself, which has led to him being sick multiple times. These episodes that have caused him to be hospitalized lead to regression in many areas and lost some skills 😔. My son is happy, charming, strong, and determined to enjoy his life with the skills he has(He's a warrior). I'm committed to doing my part to encourage, love, and help him improve on the skills he has and make his life as joyful as I can. #EliStrong #GodIsGood #NeverLoseFaith #MiracleChild 🙌🏾💪🏿🙏🏾❤😊