SMA Dad
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SMA Dad Channel Description Snapshot
Channel Description
VLOG documenting the progress of our daughter Evie and her fight against SMA (Type 1) with Spinraza. Evie was preceded in death by her sister, Blakely, who also had Type 1 SMA. The goal of this channel is to offer hope to families. We want families to know that the new SMA nothing like the old SMA; with early treatment it is vastly different. Join us on our journey as a family in fighting this cruel disease.
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