Hopes Journey with epilepsy and ACC
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Hopes Journey with epilepsy and ACC Channel Description Snapshot
Channel Description
This page is for baby Hope, when we was 20wks pregnant she was diagnosed with hypogenesis of corpus callosum,a cyst in middle of her brain and abnormal front left lobe,and abnormalities to the right side, confirmed by MRI at 1yrs of age, the outcome wasn't looking good but we had Hope! She was 3 months old when the seizures started! Then she was Finally diagnosed with complex generalized focal,partial,absent myoclonic flexor & tonic clonic spasms at 7months then given meds but no change,daily seizures still occur, lots of EEG's show more epilepsy episodes. We were told she would need life time care, She started on clobazam, keppra,vigabatrin and topamax. She has global development delays and mobility struggles. Now 4 years old we still have HOPE and HOPE has us! She's defying her odds and is so happy!
We will take any struggles head-on! ❤
💫PLEASE SUBSCRIBE AND FOLLOW HOPES JOURNEY AND PROGRESS AND HELP BRING AWARENESS TO HCC AND EPILEPSY 💫
Thanks guys its so much appreciated ❤️
We will take any struggles head-on! ❤
💫PLEASE SUBSCRIBE AND FOLLOW HOPES JOURNEY AND PROGRESS AND HELP BRING AWARENESS TO HCC AND EPILEPSY 💫
Thanks guys its so much appreciated ❤️
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